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GLOSSARY OF TERMS
Acid Reflux
Happens when the lower esophageal sphincter does not close all the way. This results in acid, produced by the stomach, moving up into the esophagus.
Alveolar Ridge
The bony ridge or raised thickened border of the upper or lower jaw that contains the sockets of the teeth.
Amniocentesis
A medical procedure used in prenatal diagnosis of chromosomal abnormalities and fetal infections.
Anesthesiologist
A specially trained medical professional that administers anesthesia.
Anesthetic
Controls pain and maintains vital functions during surgery or other medical procedures.
Antibiotics
Types of medications that destroy or slow down the growth of bacteria.
Antibodies
These are large Y-shaped protein produced by B-cells that is used by the immune system to identify and neutralize foreign objects such as bacteria and viruses
Apgar Scores
APGAR is a quick test performed on a baby at one and five minutes after birth. The one-minute score determines how well the baby tolerated the birthing process. The five-minute score tells the doctor how well the babyis doing outside the mother's womb.
Apnea Monitor
A device that measures how well you breathe
Aspirate
To suck in, accidentally drawing material into the lungs.
Audiologist
A specialist in communication disorders stemming from a hearing impairment will assess and monitor hearing.
Audiology
The study of hearing and hearing related disorders.
Bilateral Cleft
A cleft that affects both sides of the mouth or lip areas.
Bone Defect
An abnormality in the bone or marrow.
Bone Graft
In the case of a cleft, this surgical procedure involves taking a small amount of bone from one place (most often the hip) and placing it in the space of the cleft near the teeth.
Cleft Lip
A fissure in the upper lip due to fusion failure of the left and right sides of the lip tissue. It can occur side only or on both sides
Cleft Palate
A cleft palate is a split or opening in the roof of the mouth, it can affect the hard and/or soft palate.
Cleftie or Clefty
Slang term for someone with a cleft lip and/or palate.
Clomid, Clomifene or Clomiphene"
Medication used to treat infertility in women
Cochlea
The inner part of the ear responsible for hearing
Codeine
Narcotic pain medicine used to treat mild to moderate pain.
CPAP or Continuous Positive Airway Pressure
A treatment that uses mild air pressure to keep the airway open; typically used by people who have breathing problems.
Craniofacial
Relating to the cranium and the face
Craniosynostosis
A birth defect in which one or more of the joints between the bones of the infant's skull prematurely, before the brain is fully formed.
C-Section or Cesarean Section Delivery
A surgical procedure used to deliver a baby through an incision in the mother's abdomen and a second incision in the mother's uterus.
Cupid's Bow
An upper lip with two strong curves in it.
Deformity
A physical blemish or distortion.
DynaCleft Tape
Tape that pre-surgically reduces orofacial cleft for best possible surgical results. It gently guides the soft tissue and bone of the cleft lip and cleft palate into better position for repair.
Ear Canal Stenosis
A narrowed ear canal; one in which the eardrum can be viewed, but the canal is more narrow than normal.
Ear Tubes
Tiny cylinders placed through the eardrum to allow air into the middle ear. Often recommended when a person experiences repeated middle ear infection or has hearing loss caused by the persistent presence of middle ear fluid.
Early Intervention
A program designed to improve outcomes for children with disabilities by providing early, appropriate, and intensive interventions.
ENT or Ear, Nose, and Throat Doctor"
Physicians trained in the medical or surgical management and treatment of patients with diseases and disorders of the ear, nose, throat, and related structures of the head and neck. (See also 'ORL').
Failure to Thrive
Children whose current weight or rate of weight gain is significantly lower than that of children of similar age and gender.
Feeding Tube
A tube that may be put directly into the stomach through the abdominal skin if a person is having ongoing and serious trouble swallowing and can't get enough food or liquids by mouth. The tube allows internal feeding to occur by bypassing the mouth and esophagus.
Fistula or Palatal Fistula
A fistula occurs when the palate fails to fully heal and an opening or hole appears in the palate post palate surgery.
Fixodent
Denture adhesive cream; has been used for cleft children to keep a cleft device in.
Food Aversion
When an infant or child refuses to accept food by mouth or when they are not accepting the developmentally appropriate amount, variety, or type of food by mouth.
Furlow Z-Plasty
A plastic surgery technique that is used to improve the functional and cosmetic appearance of scars
G-Tube or Gastrostomy Tube
A tube placed in the stomach to provide another way to offer food and/or medicines or to vent the stomach for air or drainage.
Gastrostomy
The surgical placement of a feeding tube through the skin and the stomach wall, directly into the stomach
Gavage
A feeding tube placed through a baby's nose to carry breast milk or formula to the stomach. Used for babies who cannot get enough nutrition by bottle or breast feedings alone.
Genetic Syndromes
When one or more genes or chromosomes are missing, mutated, or if extra are present, the proteins may not get made, may be made incorrectly, or too many may be made causing abnormal developmental and growth. Sometimes these abnormal genes or chromosomes are passed down from a parent or sometimes they occur spontaneously without reason.
Genetics
The study of genes, their functions, and their effects.
Geneticist
An individual trained in diagnostic and therapeutic procedures for patients with genetically-linked diseases.
Glucose Water
A commercially prepared substance that is mostly water with a small amount of sugar added. The solution is pre-prepared and ready to feed. Many hospital nurseries have glucose water on hand for treatment of hypoglycemia.
Grommets
Tiny tubes that are inserted in the ear to treat trapped fluid in the middle ear that can result in infection and hearing loss.
Haberman Bottle
See 'Medela Special Needs Feeder'
Hard Palate
The bony anterior part of the palate forming the roof of the mouth.
High Amniotic Fluid or Polyhydramnios
Too much amniotic fluid surrounding an unborn infant that can occur if the developing baby does not swallow and absorb amniotic fluid in normal amounts.
Hyperemesis Gravidarum
A condition characterized by severe nausea, vomiting, weight loss, and electrolyte disturbance.
Hypertrophic Scar
An elevated scar that is typically more stiff than the surrounding skin and usually regresses over time.
Infinity Feeding Pump
A small, lightweight, portable, and adaptable pump built to simplify internal feeding. It safely and accurately delivers any nutritional regimen without compromising quality of life.
Intravenous or iV Medications
Solutions administered directly into the venous circulation via syringe or intravenous catheter (tube).
Intubation
The introduction of a tube into a hollow organ (as the trachea or intestine) to keep it open or restore its patency if obstructed.
J-tube or Jejunostomy Tube
A tube inserted through the abdomen and into the jejunum (the middle section of the small intestine) to assist with feeding and to provide nutrition.
Lactation Consultant
A health care professional who specializes in the clinical management of breastfeeding and provides information and support to help prevent and manage common concerns.
Laryngomalacia
A congenital softening of the tissues of the larynx (voice box) above the vocal cords.
Latham Device
A device used to maintain or reposition the segments of the palate prior to surgical repair.
Lip Taping
Preoperative taping across a cleft lip causing soft tissue mobilization and alveolar modeling that allows single stage lip/nasal surgical repair.
Mastitis
An infection of the breast tissue that results in breast pain, swelling, warmth, and redness of the breast.
Maternal Fetal Medicine Specialist or Perinatologist
A doctor experienced in a wide variety of complex maternal-fetal conditions and offers specialized care of pregnant women and their fetuses.
Mead Johnson Bottle
A soft squeeze bottle with long cross cut nipple designed to be pulse-squeezed with baby's suck and swallowing.
Medela Special Needs Feeder
The bottle of choice for much of the cleft lip and palate population. This bottle has a one way valve that helps reduce the amount of air the baby takes in and also has a squeezable teat to help assist the baby in feeding. The teat is squeezed to provide the baby with an adequate amount of formula with the least amount of effort. Formerly known as the Haberman bottle.
Mic-Key Button
A feeding tube which enters the stomach through the feeding and medication port in the abdominal wall allowing the intake of nutrients, medication, and water that your body requires.
Microform Cleft
A mild expression of cleft lip, one in which the lip is fully intact, but scar-like line is seen in the cleft area.
NAM or Nasal Alveolar Molding Device
A non-surgical method of reshaping the gums, lip, and nostris before cleft lip and palate surgery, lessening the severity of the cleft.
Nasal Cavity
The vaulted chamber that lies between the floor of the cranium and the roof of the mouth.
Nasal Conformer
Small silicone tube holding the position of the nostril during the healing time after surgery.
Nasal Mold
A cleft device designed to mold and shape the nasal area (See also NAM)
Nasal Spring
A device placed in the nostril prior to surgery in order to reshape the nose for better results.
Nasal Stents
Small, hollow, rubbery tubes that may be stitched or taped into nostrils to give support to the nasal cartilage after surgery so it keeps its new shape and size.
NG or Nasogastric Tube
A flexible, bidirectional tube that is passed through the nose and down through the nasopharynx and esophagus into the stomach. It can be used to remove the contents of the stomach or to put substances into the stomach.
NICU or Neonatal intensive Care Unit
A section of the hospital with specialized equipment and highly trained doctors and nurses that provide round the clock care to sick or premature infants.
No No’s
Pediatric arm immobilizers also referred to as pediatric splints or pediatric arm restraints.
OB or Obstetrician
A physician offering a variety of women's health services and trained to manage complications during pregnancy, birth, and postpartum.
OB-GYN
Doctors specialized in obstetrics and gynecology for the care of women to include the preconception, pregnancy, labor, childbirth, and postpartum period. OB-GYNS are also trained in woman's general health care, hormonal disorders, treatment of infections, and surgery to correct or treat pelvic organ or urinary tract problems
Obstructive Sleep Apnea
A potentially serious sleep disorder in which breathing repeatedly stops and starts during sleep.
Obturator
A prosthetic device that closes or blocks up an opening such as a fistulas in the palate.
Occupational Therapist
An individual trained to treat patients with injuries, illnesses, or disabilities through the therapeutic use of everyday activities.
OR or Operating Room
The unit of a hospital where surgical procedures are performed.
Oral Surgeon
The surgical specialists of the dental profession with extensive education and training, surgical expertise, and unp[aralelled understanding of esthetics and function to uniquely qualify them to treat the conditions, defects, injuries, and esthetic aspects of the mouth, teeth, jaws, and face.
ORL or Otolaryngologist
Diagnose and manage diseases of the ears, nose, sinuses, larynx, mouth, and throat, as well as structures of the neck and face. (See also 'ENT').
Orthodontist
A dentist with advanced training. They can realign crooked teeth into a straight, healthy smile.
Outpatient Surgery
Surgery that does not require an overnight hospital stay. Patients may go home after being released following surgery and time spent in the recovery room.
Palatal Appliance
An appliance that fits into the roof of the mouth used to widen the palate to make room for crowded teeth and improve jaw function.
Palatoplasty
A surgical procedure used to correct or reconstruct the palate. The basic goals of this surgery are to close the abnormal opening between the nose and mouth and help the patient to develop normal speech in order to improve swallowing, breathing, and development of associated structures in the mouth.
Pediatrician
A child's physician who provides preventive health maintenance for healthy children and medical care for children who are acutely or chronically ill.
PEG or Percutaneous Endoscopic Gastrostomy Tube
A soft, plastic tube that is put into your stomach through your skin.
Perinatal Specialist
A doctor that specializes in the care of both the infant and the mother in the time just before and just after the baby is born. The perinatal period is generally marked at 22 completed weeks of gestation and lasts until seven completed days after birth.
Pharyngeal Flap Surgery or P-Flap Surgery
A surgical procedure to correct or enhance the quality of your child's speech. Muscle tissue is transferred from the back of the throat or pharynx to the palate in order to narrow the nasal opening.
PICU or Pediatric Intensive Care Unit
A multidisciplinary unit that provides high quality care for critically ill infants, children, and adolescents.
Pierre Robin Sequence or PRS
A combination of birth defects, which usually include a small lower jaw, cleft palate, and a tendency for the tongue to "ball up" in the back of the mouth.
Pigeon Nipple
A nipple which can be used with any bottle and works by compression only. A plastic one-way valve fits into the nipple to keep milk in the nipple. When the baby begins to suck, milk flows readily.
Plastic Surgeon
Surgeon that manages the repair, reconstruction, or replacement of physical defects of form or function involving the skin, musculoskeletal system, head, and facial structures, hands, extremities, breasts, and trunk as well as cosmetic enhancement of these areas.
Poligrip
A denture adhesive which has been used for cleft children to keep a cleft device in place.
Psychologist
A trained individual who studies mental processes and human behavior by observing, interpreting, and recording how people and other animals relate to one another and the environment.
PTSD or Post Traumatic Stress Disorder
An anxiety disorder that some people get after seeing or living through a dangerous or traumatic event.
Quad Screen
A maternal blood screening test that looks for four specific substances: AFP, HCG, Estriol, and Inhibin-A.
Red Preemie Nipple
An extra soft, shortened nipple for small or weak mouths; no suction needed.
Respiratory Therapist
Practitioners involved in the evaluation and monitoring of heart and lung function as well as giving treatment.
Rhinoplasty
A nose surgery sometimes referred to as "nose reshaping" or a "nose job" which can improve the appearance and proportion of your nose, or correct a breathing problem associated with the nose.
Routine AFP or Alpha- Fetoprotein Test
A blood test which is done when a woman is between 16 and 18 weeks pregnant that is helpful in identifying high risk pregnancies and some types of birth defects.
Scar Revision
A surgery meant to minimize a scar so that it is more consistent with your surrounding skin tone and texture.
Sensory Processing Disorder
A condition that exists when sensory signals are not organized into appropriate responses which prevents certain parts of the brain from receiving the information needed to interpret sensory information correctly. Motor clumsiness, behavioral problems, anxiety, depression, school failure, and other impacts may result if the disorder is not treated effectively.
Separation Anxiety Disorder
A condition in which a child becomes fearful and nervous when away from home or separated from a loved one (usually a parent or other caregiver) to whom the child is attached.
Social Worker
A professional trained to provide a variety of services, ranging from psychotherapy to the administration of health and welfare programs. They help individuals, families, and groups change behaviors, emotions, attitudes, relationships, and social conditions to restore and enhance their capacity to meet their personal and social needs.
Soft Palate
The soft tissue at the back of the hard palate that partially separates the mouth from the pharynx
Speech Therapist
A specialist with training in the diagnosis and treatment of a variety of speech, voice, and language disorders who works with people unable to make speech sounds or who cannot make them clearly.
Speech-Language Pathologist
Diagnose and treat communication and swallowing disorders in patients.
Submucous Palate
The palate appears to be structurally intact, but there are bony and/or muscular abnormalities underlying the skin's surface.
Supraglottoplasty
A microscopic surgical procedure to alter malformed structures of the upper larynx to allow a child with certain conditions to breathe more easily.
Surgical Foam
A latex free, conformable, hypoallergenic, elastic foam tape which stretches to make an ideal dressing for challenging areas and for specialist applications.
Tender Care Feeder (Soft Sipp)
A soft squeezable 90ml bottle for use when syringe or cup feeding is recommended.
Theatre or Operating Theatre
A room where operations are performed.
T-Tubes or Tympanostomy Tubes
Small tubes inserted into the eardrụm in order to keep the middle ear aerated for a prolonged period of time, and to prevent the accumulation of fluid in the middle ear.
Unilateral Cleft
A cleft affecting one side of the face.
Upper Respiratory infection
Any type of infection of the head and chest that is caused by a virus. It can affect your nose, throat, sinuses, ears, the tube that connects your middle ear and throat, windpipe, voice box, and airways.
Zip n' Squeeze
A squeezable bag with an attached straw to simplify and ease eating and drinking for patients post-jaw surgery, or with head and neck cancer, oral-facial muscle weakness, and wired jaws.
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